When I declared til death us do part to my imminent husband, Allan, in September 1984, I meant it. I just never thought it would happen. It was theoretical. For the last two years of his life, knowing Al’s cruelly random Parkinson’s/Lewy Body dementia combo was terminal, it was still only theoretical. Now, his ashes, his earthly remains, rest under some ornamental orchids in my piano room. His handsome face grins at me from its A4 frame on my dresser. Seven months since his death, I'm just beginning to understand that it did actually happen.
With Allan I was always securely wrapped in a blanket of love. That's what is missing now. I still have my health, even better with new cataract-free enhanced vision. I'm physically in great form. I have my intellect, my interests, my friendship groups and friends. But that love to come home to that was only ever a phone call away has gone. The memory of it remains and I'm hanging onto that but I can't have Al's love reaffirmed by his hug or his hand to hold.
Oh, I'm
very busy participating in my days: listen to another audiobook, the more
unfathomable the plot in a Lynda La Plante or a Jack Reacher the better. Stops
me ruminating. Organise my recycling, bike-ride
or walk somewhere, always with a shopping list in my back pocket. It's good to
tick things off. Chat to whichever willing shopkeeper I can find. Over-share.
Garden. French class, German class, choirs. Busy. Busy. Busy.
This is what I'm doing every day. Trying to entertain myself and get through the next 24 hours. With luck I'll manage a few hours sleep, preferably during the night. If not, I'm learning heaps from podcasts.
Seven months on, I'm missing Allan doing the little that he could still do: in the evenings, sitting on his kitchen chair, facing the TV, flicking through free-to-air. I miss him shuffling through to me in the lounge after dinner, interrupting my absorption in yet another unmissable series, asking if there was anything we could watch together. 'Do you mind if I just finish this episode?' I'd ask. He never did. After a while I'd call him and we'd watch something that would appeal to us both. It was always my choice. I knew what he liked.
He'd sit at the corner of his couch at right angles to mine, so close that I could reach across and briefly - as long as I could stand it - hold his icy hand. In all but the hottest weather, he'd be wearing a beanie, windcheater and puffer jacket to combat his cold sweats, a symptom of his Lewy Body dementia. He'd sit leaning forward, the pain and deformity in his back preventing him from reclining against the cushions.
Throughout his illness, he only 'lost it' a couple of times. The first was when the GP told him he could no longer drive. Standing next to me at the kitchen sink, in reply to my asking if he was all right, he said, 'I'm absolutely gutted.' There was nothing I could say. The fact that I'd been doing all the driving since the previous Christmas when it became obvious that he was too vague and slow to be trusted behind the wheel was irrelevant. At least he'd known that if he wanted to he could.
The next time he expressed despair about his illness was the following year, maybe 12 months later. It was after 10 pm or so. Bed time. Time to clean teeth and retire for the night. TV was off. We'd had our drinks and customary squares of dark chocolate, our evening treat after we both quit alcohol a couple of years earlier. It should have been a cosy time but it never was while Allan had that illness. Every day was imbued with my fear of what would happen next. We hadn't yet stood up when I noticed Allan's face, so sad as he leaned forward and stared into the corner. 'Allan, what's wrong?' Well, what wasn't wrong? but we say these things. 'I'm just thinking depressing thoughts about life, the universe and everything,' he said heavily. I went to sit and hold him and reassure him that we were coping. Practically we were. But emotionally it was torture. Allan rarely said anything other than to express that through it all, he was just worried about me having to do everything because he was no longer able . He worried about me having to go on without him. Typically, I'd joke at this stage. 'Don't worry about me,' I'd say over his shoulder, because inevitably he'd be holding onto me. 'I'll be heading off to Europe with your money.' Which is exactly what I'm doing.
But at the end of the day - at the end of every day - I'm so sad and lonely without him. I had 45 years safe in that blanket of love.